I’ve had a couple of times recently when I have thought to myself “well that’s a new low.” These moments include:
⁃ Wearing an eyepatch during a video conference meeting. So far I have avoided needing to use it in professional conversations.
⁃ Needing to use my rollator walker to get around the office during the day. Again, so far I’ve been able to avoid using it in a professional setting.
⁃ Having to call my husband to help me stand up from the toilet.
The thing is, I haven’t been bothered by these things. I can still see how far I have come and overall I am a lot stronger than I used to be.
I’m also not scared anymore. It used to be that every new low was possibly a new normal. For the first two years my health was steadily deteriorating and every loss felt like it could be permanent. Some of them were.
But I just passed my 3 year anniversary of my Myasthenia Gravis diagnosis and I finally feel like I have a handle on this disease. Now I know that I can expect to bounce back, at least somewhat, from each new low.
The disease no longer owns me.